Ms. Sheila Dixit , CM of Delhi

 

Our Son & Inspiration - Arjunuday

Arjunuday was born as a sibling to healthy sister Lavanya (6) . Mummy Papa  planned second baby to give a company to their daughter. It was a full term pregnancy with out any complication. Baby was born at  a  Nursing home of south delhi through successful caesarian delivery . Pediatrician present in the operation theater diagnosed baby with

 Anorectal malformation – High

He was immediately shifted to a very reputed and famous private hospital of New Delhi and successfully operated and colostomy done.  Duration of stay was 14 days .

After spending 5 days at home  Arjunuday had recurring mild fever and diagnosed with urine infection  and again admitted to hospital , This time stay was for 21 days .

Life was not easy this time also , after spending only 4 days at home  Arjunuday was readmitted to the hospital . Now urine fungal UTI  was the cause of the  stay  for 5 days .    

More shocks were waiting for the family and again after few days  Arjunuday was admitted to the hospital with urine infection   . He was diagnosed with Colovesical Fistula by Pediatric Surgeon .Hospital stay was 10 days this time.  

Arjunuday again had Urine Infection  inspite of daily  oral dose of antibiotic  ,  Doctor advise him Oral Trxim – O for 2 weeks and infection was over now without any IV antibiotic . 

Arjunuday readmitted to the hospital again for pull through operation (creating opening of anus ) and repairing of connection between rectum and bladder and he was successfully operated . He developed urinary retention and discharged along with catheter . 

Catheter was removed after 10 days , Arjunuday was able to urinate with support from parents , However He had a mild fever and diagnosed with urine track infection  .  Doctor advise him Oral Antibiotic as his another surgery was planned for colostomy closure

Arjunuday  was readmitted to the hospital and colostomy closure was done successfully , This was the worst phase for the poor baby as he was on complete fasting ( without even drop of water ) for 4 days . This time the stay was 8 days .

Unfortunately baby had mild fever after 3 days of hospital discharge and  doctors advise parents to get DMSA – Renal and Repeat MCU   done on the baby .  

DMSA Renal shows cortical scaring on left kidney , Peripheral contour is irregular with multiple photopenic defects at the superior pole at the mid lateral border .

MCU shows Grade III / IV refux on both sides .  

 As per a journal published by well known professors of pediatric  nephrology we noted following important lines :-

Children with renal scarring should receive continued care twice a year through adulthood . Patients are monitored for physical growth and blood pressure . Investigations include urinalysis for protenuria every six months and yearly estimation of blood level of urea and creatinine . Yearly examinations are done to monitor renal growth . 

After 7 correction surgeries, 9 hospital stays and over a million expenses , Arjunuday is still under going through following follow-ups

AIIMS for his Renal Functions , Urine Reflux and Blood Pressure Monitoring

LNJP Hospital  for Anorectal Malformation , Continuous Severe Diarrhea , Tracheo-esophageal fistula and Anal Mucosal Prolapse

Baijerbai Wadia Hospital for Children, Mumbai for Fecal Incontinence

Dr. Bela Sethi’s Physical Therapy Clinic, NDSE , New Delhi for Anal Re-education Therapy daily for continues 3 months. (Physiotherapy for fecal incontinence secondary to anorectal malformation)

 

 



Lage Raho Munna Bhai

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